Your health data belongs to you.

For most patients with chronic illness, health data is something that happens to them. Specialists collect it, hospitals store it, brokers sell it, pharmaceutical companies use it — and the patient whose body produced the data sees almost none of the value.

We've spent our careers on opposite sides of this asymmetry. Martin has spent years inside the clinical research and data ecosystem, watching how patient information flows through pharmaceutical pipelines without returning to the people who generated it. Simon has spent twelve years building communities of patients with chronic illness — over one million of them — who repeatedly articulated the same problem: they want to participate in research that might help them, but the system gives them no way to do so on their own terms.

DataValue is what we've been building to address that. The Personal Health Data Agent aggregates a patient's full medical history, helps them understand it through AI, and lets them choose — on their own terms, with full consent — to license their data to pharmaceutical research. Patients earn from every license. Pharma gets cleaner, longitudinal, consented data. The middle layer that has historically captured the value gets disintermediated.

The technology and the timing are finally there. The European Health Data Space comes into force in 2029. AI tools are increasingly asking patients to upload health data they don't yet control. The infrastructure to put patients at the center has to exist soon, or it'll be built by someone whose interests aren't aligned with theirs.

We're building it because we believe it should exist, and because the communities we've spent our careers serving have been asking for it for years.